Prolia Side Effects (Page 78)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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Anyone here call Amgen and ask to speak to their legal dept? They must have some law firm representing them in side effect cases.

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Hi! The big question is: what did prolia did or what ot does that causes peripheral neuropathy? If we find out why, then we can treat! My doctor says there is no doubt it was the prolia dor my moms case, but we are still trying to figure out what it did to her so he can help her with neuropathy.

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I was not diagnosed with peripheral neuropathy. It sure sounds like I did have the same symptoms. I wish I can tell you to do XYZ and the pain will go away. Every one is different with side effects. Along with the burning, numbness, feeling cold in my hands etc. I had at least another 20 side effects. My side effects started off at two weeks and continued even after six months. No pain medication helped advil to viacdon. My doctor prescribed Physical therapy and cold packs. Had muscle spasms through out my body to even now 3yrs. later still occur. Did your doctors call AMGEN at 1-800 772-6436 ? I hope this helps. Wishing you the best. Keep us updated.

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I read on a web site that Merck had an ONJ department to deal with people who got ONJ from fasomax.

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RM: You or your Mom's doctors need to call Amgen 1-800 772-6436 ask to speak with a pharmacist or doctor who had knowledge of Prolia's side effects and Peripheral Neuropathy. Tell them your experience, explain to them your mothers side effects. Maybe they can research and let you know what triggers the Neuropathy. Suggestions: Muscle spasms, inflammation, swollen muscles, just guessing here. I hope this helps.

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I have had this injection 2weeks ago and I am having pain in my upper arms, shoulders , neck and back of my head , am also having sleep problems, I do not think I will get another injection.

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Hi all. Still no solution found or relief for my mom's neuropathy case. Doctors are impressed with her being so healthy that they cant find what possibly got wrong. We are seeking hard for what the cause is, we know prolia did something to her, but what? Her foot capillaries seem to pump too much blood to her feet making them feel like they burn. We noticed this since her feet turn dark sometimes when burning is too intense. She has a lot of prickling in her feet too. It seems people with osteoporosis and taking osteoporosis drugs like prolia have developed such symptoms. If anybody out there knows anythig, suspects or could help please let me know. I just cant see my mom suffering so much for the pain and doctors say that she has to live with it. 1.5 years since she took the prolia shot. Our lives changed...need to find hope. We keep fighting.

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I had three prolia shots. I began to develop many of the negative effects immediately but didn't connect the onset with the drug, because by the time I was ready for the next shot the symptoms had abated to some degree. I had described to my prescribing physician after the second shot my concerns which were dismissed. My family doctor took me seriously enough to have me tested for Parkinsons's, MS, and even Alzheimers, as well as neuro-muscular issues as I was so unlike myself. Only after the third shot as I lay in bed one morning weeping because the pain in my legs that went straight through my bones (or so it seemed) was so bad that I began to seriously sort out the variable(s) in my life that might be responsible. Prolia was the only thing that came to mind. So I googled it in the middle of the night and encountered all the symptoms I was experiencing. As it was the weekend I went to my pharmacist the next day and he went to his reference sources (even though they are not allowed to dispense the drug) and came back with the same list I had found. I met with my family doctor who immediately reinforced my estimate and said "no more" but also said I was the only patient that had responded that way. It has now been more than 6 months since my FINAL shot and most of the symptoms are lessening. However I still find walking any distance an issue (at it's worst I had to make an actual decision about going out to ;pick up the mail and frequently let it go for more than a day rather than make the walk). I have worked with an accupuncturist as well as a masseuse and have found some relief in that way. At least the psychological effects have abated as has the constant trembling.

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I am suffering horrible side effects from Prolia and I called Amgen to ask them how long this drug stays in your body. They we NO help and all the girl would give me was percentages of people with side effects. She was listing the many side effects and I stopped her to tell her she wasn't answering my question. Just unbelievable.

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I ended up with chronic pancreatitis!!! I was advised to stop treatment!!! It happened on my 3rd injection!!

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Judi, I have called Amgen 6 times since I had the one & only prolia injection on 11 Aug. 15. The 1st time I called a general # & got the same statistics you did. You can reach a pharmacist @ 1-800-772 6436 then hit 1 & then 6 to reach them. The pharmacist will send it to the proper department. It has been almost 14 months & I still have side effects from this devil's drug. On 30 Sept, 2016 I wrote a letter to Michael Severino - Chief Medical Officer - Senior V.P. Global Development - Amgen & sent it registered mail that requires a signature when received & a return confirmation to myself. I wanted him to know what prolia has done to me & thousands of others like me. If you or anyone out there wants his address, just ask. I hope you are doing better as well as everyone out there that are suffering from prolia side effects. Have a good one!

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Kitty~and a billion dollars set aside to pay all the claims against them. Still have it too as people are still taking this particular med knowing full well what it can do. Pood

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Kitty~The muscle spasms are definitely from Prolia. Prolia wants more and more calcium so it goes into our muscles to get what it wants and it hurts. That is the only place we humans can store any calcium in our bodies. The only way to counter this is to take 500mg Magnesium every night when you go to bed. It helps enormously. I Promise!! I still take it a year after Prolia was up and when they go down into ankles and feet I take a pure salt tablet for 5-7 days and that's the end of that. Just recently had total testing for surgery. My Primary was astounded at my blood/electrolites commenting: People just don't have this magnificent blood at your age. I'm 71. I just smiled. I did list it as something I use but since it's not a medication he seemed to pay no attention to it at all but sure loved the results. So do I because I don't like pain. Be well~Pood

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Pood, Why do you take salt tablets for your feet, wouldn't salt make it worse?

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Poodle, Amen to the muscle spasms - Unbearable!
Just a tidbit of info from: Drugs & Devises. Amgen has made 112,732 payments to over 36,000 Drs. & paid 5.34 Million Dollars for injections of prolia to innocent patients! Shame on Amgen,Shame on the FDA, & Shame on the Drs. for causing such pain.
(It's as if the docs need the money)

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Wise decision, this stiff is poison. After a year I figured out my problems were caused by Proliea

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Sheri~it depends on the cause. I don't like salt very well so seldom put it on my food. When Prolia showed up with foot and ankle cramps I said something to my brother about it and he gave me some of his salt tablets. Worked like a magic charm. I took one a day for 7 days. Later on it started in again and I only had 1 salt tablet left so I took it and a couple of handfuls of just salt for two nights - tasted horrid but got rid of the cramping immediately. I can only say to try it and see if it helps you as much as it did me. Prolia does very strange things to our bodies and most of all our immune systems. Pood

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Anne: Where can I find the "Drugs and Devices" web site? Is it part of the FDA web site?

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Hi Pood! You are an inspiration and guide to us all in here! You seem to understand Prolia much better than those who should! I would love to write to you or talk to you. I want to help my mom find what prolia did to her so she can recover from burning pain in her feet and prickling tingling pins and needles feeling on her feet. I just cant sleep or feel the same knowing she is in pain thanks to this drug. Let me know!

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Jan, I can answer that one for you. Prolia is made from something alive or was alive on this Earth which means it is carbon based. Everything that is carbon based has half lives and half lives never end. They go into infinity. Amgen says the half life of Prolia is 16 days I think so that in 16 days 1/2 of it is reduced in your body and in another 16 days another 1/2 of that half on to infinity. There will always be a tiny, tiny amount of Prolia in our bodies. We really don't want to be talking to Amgen. Go straight to the FDA. Supposedly Amgen is required by law to report all adverse effects to the FDA. Do I trust them? NO! We have to keep the pressure on the FDA to get this recalled. Hugs, Pood

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Would like to know if anyone had side effects from Prolia but they went away - and how long did it take for that to happ...

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I had my infusion Mar 4 2015. I have experienced severe stomach pains, leg pains that wake me up at night, a horrible dr...

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I developed a red burning itchy lumpy rash after one injection of Prolia. Mainly on face neck chest arms scalp. Anyone e...

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I'm a 59 year old female, diagnosed with Behcet's Disease and I use Prednisone for treatment for my weekly flare...

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I am 60 yrs old and suffer from osteoarthritis, osteoporosis, and myofascial pain syndrome. After discussing with my end...

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I am 81 and had my first Prolia Shot May 7, 2015 and after three weeks I have developed a red rash looking sight UNDER t...

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Aprox 2 weeks after the prolia injection I started to experience nausea and weight loss. Also, loss of appetite and a ke...

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I am not going to have my next shot of Prolia due 11 June. I have already had two injections and lately have suffered ho...

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I am a 57 year old female who has -2.5 bone density scores on hips and -3.4 in the spine. I used Forteo for 2 years, but...

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What does the pharmaceutical people of Prolia advised regarding its side effects? ## Hello, Lala! How are you? They do w...

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