Prolia Side Effects (Page 72)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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Diana~Hypercalcemia is definitely from Prolia and as we all know, just stopping the drug does not remove all of it's side effects in the body. Tell your stupid MD to think about carbon and carbon dating and then he may get a clue about what Prolia is still doing to your body. Prolia is biologic so it grew on this Earth so it has half lives. Period. The end. These guys did study science, didn't they or is that something they get to skip in medical school. Angrily and stupidity of our MD's ~Pood

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Skittie~the pharmacy here keeps it in stock so I'm not the only one taking it. Basal cell is basically nothing. That's why the instructions say to have the nose checked once a year. Big deal. They don't like it because nobody is making big bucks on it. And, they have NEVER been sued like Merck has or like we want for Prolia. Even Prolia causes basal cell carcinoma but not in the nose. It does need to be looked at and stopped which is a pretty small procedure. I don't know why they have their heads stuck in the sand. Get well - Hugs~Pood

For everyone's edification - Reclast did 0 for my bones in one full year. You have to go to the hospital to have it put in and it takes a good couple of hours or so of your time. You need it pre-approved before insurance will pay for it.

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What? I have had 2 basal cell miles grow and be removed since I had my Prolia shot!!!!!

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YUP Jan~that's from our 'nasty' friend called Prolia. If one looks deep enough into the side effects of Prolia it is there. The first person that had it, paid no attention to it so it did manage to get inside to a very nasty place to have cancer. Not a whole lot they can do about that one but as far as I know she is still alive and kicking. It may be on this thread but far, far in the back pages. Pood

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Interesting one can get cancer from Prolia.....makes sense, many side effects are exactly what they say the med will cure. PS Poodle, I am willing to get in on class action suit. I'm looking for copy if blood tests with claim level pre Prolia. In 2014 it was happily normal.

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There is one person that I will call tomorrow and ask if he would be willing to do it. He does a lot of drug class actions but so far has not mentioned Prolia but he doesn't know about all of us. And, there are more and more of us by the month. I wonder how many of us there are. It costs 0 to go in. If he wins he takes the larger share and we divide the left overs -- usually 60-40 but I don't care if I don't receive one cent. Out of our 40% they take out all phone calls, postage and everything they can think of to line their pockets. I just want Amgen in Court where they belong! Was in one before and just got a notice from the Court that I won but no money. I was thrilled!! Pood

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I thought u couldn't sue drug cos

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I found a different one (class action) that looks promising and they have already sued on Effexor, Vioxx, Bextra, Viagra, Raptiva, Paxil, Oxycontin, and many others. Someone here will have to take the work on it over for me as I'm having total knee replacement sometime in July-first part of August. Calling today!!!!! The names I did not recognize are psychiatric meds. "Companies that manufacture pharmaceutical drugs have an obligation to provide products that are safe and reliable. Any marketing and advertising that is done for such products needs to be honest and should provide an adequate assessment of the product. Any side effects must be disclosed to consumers so that they can make responsible, appropriate decisions."
Also includes you or your loved ones. The most they can say is 'no' and I'll keep looking. Prolia ads on TV are far from anything about the truth of Prolia -- just Blyth saying: 2 shots a year saves our bones and the FDA is busy keeping up with their problems. Where is the truth in that advertising????? Is there anyone else here that is used to talking to attorneys? They are only human being like we are that studied Law at the university. Courts are NOT about justice, they are based on LAWS. There's also one right here in town but I think he would not want to go national. He's also getting a little old I guess I would say and very grumpy I hear but he sure loves MONEY! @ C. Louise -- how would your family know. The names are not published. Response please from all~Pood

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Called and left a message to call me back. Said there is a large number of us so you all better get in line if they take this. I'm asking for much longer than a week to get the message to everyone in the back pages. How many do you think we have at present?

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I'm not sure at all how these suits work but was in a group of home owners that sued a home builder about 15 years ago. It was a lot of work, we hired an attorney and provided much information and $$$. I get that there is no fee here. I can't imagine suing alone and feel a legal case is best because the end result is to spare others the damaging effects of Prolia. I would certainly be a part of this action when it happens. I just don't believe I would make the best point person. I can help out, however...

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Just FYI - may take some research. I had a firm from New York contact me (I probably answered an ad) in regard to damages from an antibiotic. I told them I certainly had coped with some symptoms through the years, but didn't know if it could be proved. They said they would do the work. Still, being a sort of driven "digger of info" I finally found a doctor I went to when I used to have constant bronchitis, and, viola, there it was, yes I had taken that drug over a period of time. So I am preparing to get in contact with them after I have time to read through the lengthy contract - I also have a friend who had taken the med a lot, and her tendons began to split in the back of her feet/legs - but that part is irrelevant. I asked this firm if they had any cases going in regard to Prolia, and they said no. I don't know such attorney groups' criteria for taking a legal case. Maybe I will know a little more when I finish the commission of a portrait I am almost done with, and can concentrate on reading this contract, and if necessary, getting an opinion on the contract. These Flouroquinolone law firm people are calling me after some weeks have passed since initial contact, usually twice a week. I have googled them, they look like a fairly successful high end law firm, specializing in litigation, but as I said, out of curiosity, I checked to see if they would take on Amgen for the Prolia, and the answer was not at this time. In the Flouroquinalone drug legal case, they say there are no costs to the persons suing, all costs are taken out of the settlement, and if no settlement, no costs. (As you previously said, people might not get much, if anything, other than the satisfaction of getting the drug off the market, or more disclosure of the damages it could and does produce in its wake. I agreed to the doctor's suggestion knowing there was a "small risk" but I thought it was worth a risk. As the Prolia devastation proceeded and still proceeds, I know it is much more than a few words on a printout, and the doctor saying "I have 100 patients on it and you are the only one with problems." I would just like to verify, and not sure how, if what this firm that is working on the flouro med is telling me is the truth before I proceed with signing on the suit for the deadly bronchial/lung disease/etc., med. After this Prolia thing I'm just tired of doctors, drugs, hospitals, bills, etc. etc. not to mention being bed ridden two or three days in a row after a mere shopping trip for groceries. So - - this are just some things to think about. I could devote an hour a day or so for research looking for a firm, hopefully decent sized and reputable in regard to taking on legal action against Amgen specifically over the effects of Prolia. If that would help. I wish the New York Company would take it, they said I didn't have to do anywork, and that sounded nice as we as Prolia victims have no idea when or if we will be functional for the day.....or part of a day. But not yet anyway. Probably many folks are out there with the Prolia wreckage that don't research and are just resigned.

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I'm under the understanding you can't sue the drug co u hv to sue the dr???i certainly hv enough bills that they should pay for issues I didn't hv before prolia. I called fda and Amgen and no one seems to care.

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@Sher~drug companies get sued all the time. Merck has a $1 billion fund just to pay out for the law suits it loses. One, individually, would have a difficult time suing a large corporation because attorneys are expensive. Lawyers are busy over the Takata air bag issues, talcum powder women use that can cause a possible cancer, machinery that does not work correctly, lithium batteries. They have lots and lots of things they are suing corporations on and Amgen is only a corporation that makes bad drugs. Prolia has killed between 4-5,000 people. That alone is reason to sue them let alone they never told the FDA the truth in the beginning. We were nothing but guinea pigs in their failed experiment and apparently they know it's not overly wonderful too and that's why they are working on another one as was in the links posted.

Diana~ if this one comes thru -- you are hereby notified as to be the person in charge. We need a good month in time so everyone here has a chance to join if they want to. If yours comes thru, we will follow you. My week did not give people in the back pages time to come forward. I will join simply because it gave me an auto-immune disease that is supposedly in remission. I have the medical proof on that. That alone shows it screws up our immune systems as does the Sjorgrens or however that word is spelled -- Prolia gone wild…the lady with the bone lump grown in her eye socket that they cannot help. We have others with rotted jaws, etc., etc., etc.

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It has now been 11 months since I had my one & only Prolia injection! The following side effects are still with me & going strong. Pain in my hips & thighs - Sciatica - Muscle spasms in my legs - Dermatitis - Hair loss -Psoriasis, which is not listed as a side effect, however it is from the immune system which is a side effect. I have NEVER had skin problems in my life - not even as a teenager. Of course hair loss was not mentioned as a side effect until I dug deeper into the cancer websites & discovered that prolia is a cancer drug. I was again on the phone to Amgen for 40 minutes on June 24th to a Pharmacist for the 5th time since Sept. 25th 2015. I have sent form #3500B to the FDA 3 times since Sept. as well. It can be done on line, but when you hit submit it won't allow you to do so. It must be their way of not allowing you to report the devil's drug.

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Anne: I am sorry for your pain and suffering. Glad you spoke with Amgen and reported to FDA. Keep reporting. The FDA online report didn't have enough room for all my information. I send a hard copy of my letters to FDA and mailed them. First letter was nine pages, second updated letter was11 pages. My letters followed the format of the FDA online report. In about three weeks you get a form letter stating they received your report. Keep encouraging others to report to FDA and call Amgen. Wishing you all the best.

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Anne~I called the FDA and spoke with them personally. I was told: "if we get more reports like yours, we will take it off the market". I have no idea what my magic words were to get that response. Just keep updating them with EVERY NEW side effect because you know it's not YOU, it's the miserable Prolia. There is another place on the net where people can write in about Prolia. They feel alone and like it's just them so I have invited all of them here so they will find out they are not the only one with severe and nasty Prolia problems. They will find a whole forum full of us. Now, finally, a year and about 4 months from the first and only inj., my back is getting some better. I complained to my Dr. about the hair loss and she just commented - we all lose more hair as we age. I should have taken and shown her what came out of my hair when I wash it. That's far from normal hair thinning. There are some people that have signed on with lawyers and settlements but it seems as if it is for an individual attorney, not a legal case so I think that means they are a no go. I got a comment back that they didn't find anyone that would want my case. That's weird because my own attorney can do that for me. I just know what the bills are and the split is because I have used him before. I won but he got the lion's share of the money. Other than the 60-40 split, i got charged for every phone conversation, piece of paper, stamp, etc. The only thing I was not charged for was his time in Court as that is where the split came in. Anyone in the US can sue anyone except for governments and one needs permission from the governmental entity to be allowed to sue them. It comes from old English law where one is not allowed to sue the King so in the US we based our laws on England's so we need permission to sue at city, state or Federal levels. Does that help clarify the issue? It's not going to help much to sue the Dr. as they all have malpractice insurance so we would only be going against insurance companies, not the MD's themselves. Amgen is simply a corporation and as such it can be sued for multi millions or billions of dollars. Now, if a corporation has LLC, after it's name, that means you can only sue the assets that are held in the LLC, which is usually only $10 or so and they get to escape. Amgen is not a LLC corporation. Do you all understand better now?

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Sorry you are still having problems I am counting Dow to November when my 6 months is up with this evil drug but it looks like it may not be over then omg I hope so. So tired an my balance is off I feel swollen all over.

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Poodle,

To whom did you speak with at the FDA & what phone # did you use?! I too would like to speak with this person on side effects of that wonderful prolia. The phone # I use to speak with a pharmacist is 800-772-6436 - hit 1 & then 6 to get there. The first time I called in Sept. 2015, the woman listened to what I had to say & then wanted to read me all about their studies & how great they were. I of course told her I wasn't interested as I already had the results in my aching body. I could care less what their trials showed. You can go to 'Ask a patient' & find the FDA Adverse events summary for prolia. It gives you the top 20 adverse effects & at the TOP of the list are the # of deaths caused by prolia (4,667). Doesn't Amgen have any conscious at all! I highly doubt it!!!!! Thanks for your feedback.

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I'm still looking have found no lawyers that will take a class action suit against Prolia but have ONE That might do individual. Also found one set of statistics that had 121 deaths in a trial study of per approx 5000. Reclast had 500 deaths in close to 5000. These drugs are awful and we know it. I am up for continuing to research as well. From going through lists both in class action and privste companies of suits that have been successful, Prolia is only mentioned once so far and I notice suits that seem to be successful are on drugs that have been hurting people for a very long time. So I'm wondering why. Wish I had a friend that is an attorney. My last side effect is hyperglycemia which probaby indicates a tumor or tumors on parathyroid. When I confronted doctor with info he said my calcium levels did not indicate a need for surgery yet, though high enough for concern. So I mentioned a clinic in Tampa that does minimally invasive surgery to remove tumors. He had two patients that went and they are now fine. Why was he keeping that a secret. So next will be a scan of some type on parathyroid here. If there is nothing and calcium is still pouring out of body through kidneys snd circulating as overloads in blood i eill go to the clinic. Anyway this condition seems to be a blow back effect of Prolia which as Denusumab is used for cancer treatment under that name. So this could be much longer but I'm stopping here with the attorney search results so far. Wish I had better news. I don't know how many more will have to be killed or maimed before they take a serious look at the effects of these drugs. Since they are used in the big business of cancer I have a feeling AmGen may be well protected. Sorry I don't have better news. But will keep researching - may be some good news tucked in there somewhere. Sidenote: I am just amazed endocrinologist wanted to treat the parathyroid issue with Reclast. This NEVER showed up in every three months blood tests until 15 months after Prolia. So be alert in regard to your blood tests.

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Sounds so familiar to what ice been through. In one injecton of Feb 2915. I now have hypercalcemia caused by more than likely tumors on parathyroid. 20% possibility of cancer. Never had these result's from blood test pre-Prolia. And for some of us it comes with emotional abuse by doctors who deny Prolia or Reclast haVing any side effects. Statistics are close to 1.5% Prolia patients in trial studies die, and for Reclast about 5%. Near as I can tell. Just my experience and research trying to recover from the side effects,after receiving the rejection.

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