Prolia Side Effects (Page 68)
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I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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Im so sorry about your dental news... I am currently trying to get my dental nightmare figured out. I have impeccable good dental hygiene and since prolia have gum disease. What??? I am concerned that moving forward. My mouth will not heal properly for holding implants due to the prolia still lingering in me...

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How long ago was your last prolia shot? Why does your dentist feel your Body will handle the bone building graft now? Does dentist plan to give you more healing time? Has your dentist worked on other prolia patients?

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I am sure it is Prolia that is causing your dental problems. Mine are breaking off at the gum line. All happened after my Prolia injection. I go Thursday to have these pulled and start my bone grafts to start on my implants. I am so mad. I have lost 7 teeth.

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It's strange you just wrote that Jan. I went back to my dentist basically for a cavity on the front tooth which was no big deal and then he took X-rays and the bad news came out. On the left bottom I have to have two pulled and implants put in. Somehow they managed to decay under crowns. There is only one culprit here and I'm pretty darn sure it's name is Prolia. I take very good care of my teeth and gums and brush at least once a day with salt and soda so I will have very healthy gums. I cannot wait for the X-rays on the other side.

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Poodle, you can bet your life that the deleted page on prolia was more than likely bought & paid for by Amgen.

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Anne~I checked the FDA's website as I'm sure that's where I read it. Now, one whole page on Prolia has been deleted by the FDA. Could that have been at Amgen's request???? Hugs~Pood

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Thanks for the reply Elaine.
The hives have cal.ed down some along with the itching. The doctor at the medcheck I went to on Sun. recommended an itching lotion called Sarna. It worked much better than the cortisone cream and the benadryl cream for me anyway. Hopefully these hives will go away but have a feeling after 5 days when the prednisone is gone, that they will occur. My doctor said she doesn't want me to take another injection in 6 mos. Which I wasn't going to anyway. I hope your rash goes away and you continue to improve. It would be nice to take medication for an ailment and not have so many side affects. I'm very fortunate that I don't have to take much.

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Prolia is not a journey, IT'S A NIGHTMARE!!!!! God forgive the doctors for valuing the $'s they get paid from Amgen, more than they value patient's health & well being.

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Deb, I hope as well it doesn't last the entire 6 months. I received my 4th injection and a week later the rash started, April 10th will be my 3 month marker, but I am telling you every 16 days when the half life is reached I start having a resurgence of the rash and itching although not as severe as the first 32 days. Still plagued with the dry skin mostly on my arms at this time. I only took the prednisone once and have been using benadryl at night and singulair in am, along with hemp oil (for the anti-inflammatory effect), and grape seed oil as it is very gentle to the skin. I have a hard time tolerating anything touching my skin, as it makes the itching worse and even sharp shooting pains while it is in contact with my skin. Good luck, there seems to be many of us on this journey.

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Had my first Prolia shot on March 2,2017. After 2 weeks started getting a rash. My family doctor gave me a medrol pak because we weren't sure what was causing it. The rash now has turned into hives. So did some research and with all of the people reporting hives, I'm sure it's the Prolia. The itching is horrible. Calling my doctor again on Mon. Hope it doesn't last the whole 6 mos. Don't think I will get another Prolia shot.

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Correction, I posted the incorrect article date: NY Times Article - "Fearing Drug's Rare Side Effects, Millions Take Their Chances with Osteoporosis" By Gina Kolata June 1, 2016. Many are suffering.

Also read NPR Health "How a Bone Disease Grew to fit the Prescription", Dec. 21, 2009 Alix Spiegel. As POD has said, "Have at it ladies".

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Hi Judy: It's odd the guy at Amgen would say they didn't get many calls to complain about Prolia. Heck, their lawyers even have an ONJ and a special claims department. I understand since you are suffering, you want some validation. You won't be getting it from the maker of this drug. Just a guess, they can't comment on the amount of calls they are getting for legal reasons.

Let me start here by saying that I also have had years of problems with my one injection of Prolia. The hardest part was the pain, suffering and lack of information and conflicting information from doctors, and no guidance from Amgen.

Yes, I have written and called the FDA. Spoken to attorney's etc. Do we really have grounds for a class action law suit? Think about it, our doctors gave us a drug approved from the FDA. The warnings were listed on the enclosure. If an attorney picks up a case, the legal fees would probably cover any reward we would get from Amgen. To my knowledge, the FDA is not reviewing or retracing this drug. Maybe the next step is what was mentioned in a few posts below, to call an national investigative reporter? NY Times did an article June 6, 2016 on rare side effects of Osto drugs. In two days the comments numbered over 600 expressing others difficulty with these drugs.

Your thoughts?

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So sorry about your dental issues and weight gain. I had my prolia shot January 2016 and it is now one year and 2 months post prolia shot day. I had rapid weight gain of 30 + pounds and muscle weakness. Water retention was part of my issues. I went up 3 dress sizes and a shoe size and a half! I know because I had to keep rebuying the same dress for my daughter's wedding...it was CRAZY. I am now doing dental work. I am so tired exhausted frustrated and more- dealing with side effects and after effects of prolia. With respect to the dental and prolia. I now have loose teeth, failing teeth with posts and gum disease- which I never had before. I have excellent dental hygiene. I have info that prolia causes gum disease. I keep thinking "what next?".

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Anne, that was quite some time ago and I 'think' I found it on the FDA's site on Prolia. Probably fda.gov. If not there, I'll look thru my usual sources of drug info. In my line of work I have to know all about biology and drugs or I cannot work. Even now retired I have a keen interest in Prolia since it about took me out. Will let you know. Hugs~

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Thanks Pood for the "pep" talk. When I first told this doctor about the side effects I was having , she cut me off quite quickly and said she already knew what they were! That she dealt with the drug company! And yes , I will go back and tell her, itemizing what all the other Drs have done to help me get through all these side effects. Dentists, oral surgeons, rheumatologist, physiotherapist , dermatologist, and ,of course, my very supportive GP who referred me to these specialists. Not only the cost to my health, both medical and mental, but also the out of pocket costs which insurance did not cover. Oh yes, the needless worry that it played on my husband and children! I received none from her. Just a denial that Prolia was not the cause of my problems! This will also be my last appt with her.

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I have lost 7 teeth and gained 20 pounds since taking Prolia 15 months ago. No more Prolia for me.

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Judy~yes, I believe you should go see this so-called Dr. that almost killed you and let her know what all happened to you and to tell her from now on READ the boxes that Prolia comes in. I'm sure if it's in the US, it's in Canada too. It will also make you feel better -- just getting it all out and dumped on that Doc. Just don't let her talk you into anything else. The only thing I have found that is safe is Calcitonin and Docs don't like it because it's cheap and old but it works. My mother used it and so do I. I would not even be the least bit polite either. Hugs~Pood

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The best thing about Med hat is that we all know that if us the prolia and not us--- regardless to what the doctor says... it dentist.... lawyer.... pharmacist... specialist... spouse.... children.., friend..., WE know from Sharii g with each other that it is and was and IS the prolia.

Therefore we take care of ourselves knowing what our body was before prolia and how it is now and how we hope it will return to be.

I was a healthier person with osteopenia and osteoporosis before Prolia. Next day I reacted to it and have been progressively sick from it. At 1 year I am finally returning back to a healthier individual.

Know it is not you- it's the prolia and stay your course to improved health as time passes..... hugs

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Pood, I did contact the Canadian government health agency with my complaints and did get a reply confirming their receipt of it. They all have assigned a case # which I am to refer to with any more health issues regarding Prolia. I have even tried to contact a health reporter at one of Toronto TV networks who does investigative work on health issues etc. Haven't ever heard back. I may now try contacting the journalists at the newspapers who write about medical issues. There doesn't seem to be, that I know of, any med chats in Canada as there are in the US. When I called Amgen (twice) all they said to me was they had had very few calls regarding problems with Prolia! Even the doctor who prescribed it said she had never had any patients with issues and that mine were all caused by long term stress dealing with my husbands stroke. Which, by the way was quite mild. He is still very active and it was just some aphasia and memory issues he's had difficulty with! This doctor, I know, is in big with big pharma and has done drug studies for them. She is an ob/gyn at a large Toronto hospital which also depends on big donations. I am due to see her in June and am seriously thinking of cancelling and having all my records sent to my GP. However I also would like to confront her, once again, with some of my issues and how I have had to deal with them with other doctors and dentists!

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Pood, Where did you get the info on the black box warning! I would certainly like to look that one up & gather more info on prolia. Thanks

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Would like to know if anyone had side effects from Prolia but they went away - and how long did it take for that to happ...

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I had my infusion Mar 4 2015. I have experienced severe stomach pains, leg pains that wake me up at night, a horrible dr...

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