Prolia Side Effects (Page 50)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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It is true that the bone built up from Prolia starts to go away immediately after stopping Prolia and it is not healthy bone, it's brittle bone. That's one reason I've not even bothered to ask for a scan. Amgen says a person has to take it for 10 years and apparently that is one of the reasons for their on-going 10 year clinical trial. On a new commercial on TV last night, it was all about bad side effects and "Prolia builds your bones with only two injections a year". They have all the new FDA info in the commercial now. You can keep it healthy yourself by taking the correct amount of supplements and do light weight bearing exercises. You can have Salmon-Calcitonin as it is a nasal spray. Docs like to say it doesn't work but I know for 100% sure it does. Have you tried Reclast or Boniva? They are injections too. Reclast is once/year and Boniva is more often. Prolia is supposed to be reserved for the people for whom all other drugs failed. It is true one has to take a 'holiday' while on the latter two. If you read Amgen's material very carefully, I'm sure you will find out about the bone reversal problem when quitting it. Be well~Pood

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Oh my... I just got my first injection of Prolia on Monday the 18th. I googled side effects because I've been constipated ever since the injection, plus a bloated feeling and anxiety already. I tried on a pair of jeans that have always fit me and they are now tight in the waist. I am 54 and a small person and was diagnosed with Osteopenia after I fell and broke a wrist, my numbers from the bone scan were not terrible...maybe a 2.2-2.4 in the hip area. Now I feel I have made a mistake accepting to take this drug. What scares me also is I have hair loss to begin with and what else am I going to see since it's only been 5 days? Well it's too late to do anything now but treat the side effects. :(

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Treva: Please keep us all posted on here. We will be wondering about you. Good luck.

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Tess - please keep us posted : the bloating is something I have noticed, but my metabolism has slowed down since then chemo and tamoxifen shut down my estrogen. I walk each day, watch what I eat, but still have this belly that's bloated!! So frustrating!!! My next injection is due April and I do not want another one, but my oncologist really wants me to have it. My husband keeps telling me I am not a doctor and I need to follow their directives, I really appreciate people like you and Poodle that post on here, it keeps me informed and helps me know I am not alone. Hang in there!

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Rrd - please tell your husband he is not the one suffering, YOU ARE!! We are not 'playing' Dr. here. We are discussing what happens to us on Prolia. Ask him to please sit down and watch their new commercial. It's 99% side effects and 4 words for Prolia. Or, you may want to suggest that he tries out the next injection while you abstain. I'm guessing here that you had breast cancer since you are mentioning some drugs that I know well. Did the chemo diminish your bone density? It has not in others I know including me but we don't all get the same drugs. I would go for any of the other bone building medications since Prolia is a last ditch effort drug. You could tell your Oncologist you would like to try Boniva (injection that lasts 3 months). Reclast is once a year and the first two months are not good at all but still far superior to what Prolia does to us. Also do not have to take them for 10 years. The FDA ruled 'drug holidays' for those two. Look into them and make an informed decision. Congrats on being a fellow survivor and that's a really good reason to not take Prolia because it reduces our immune system and you need yours at 100% to keep that nasty C word totally away. With an impaired immune system you are putting yourself at risk again. We have cancer cells in our bodies all the time. The job of our immune system is to seek and destroy but it cannot seek and destroy when it's not functioning well. Stay well~Pood

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Treva~Prolia is a drug that is only supposed to be used on people for whom none of the other medications worked. It is for severe osteoporosis, not osteopenia. I am so very sorry your MD made a mistake and put you on this horrible poison. Hopefully, you will be luckier than most and not have all the horrible side effects. The hair loss seems to last far beyond the 6 months of Prolia. You will notice on the side effects it says: unexplained weight loss or gain.
Please keep posting so we can give you some suggestions for your Doctor as they seem to not understand Prolia at all. Just know you need to be very careful now as your immune system is not working well. Stay away from people as much as possible. We can always alcohol our hands but there are lots or 'bugs' in the air we can catch. Go to Amgen's website and read all the possible side effects. When you get something, call them and the FDA if in the USA. We have successfully gotten more info on the labeling of Prolia by contacting the FDA. Hopefully, we can get it off the market. Be well~Pood

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Victoria~being new to Medicare is a blessing. You are supposed to receive a complete physical exam. In that exam you can ask for a bone scan too since it is an indication of your health, just are the blood tests, etc. Go for it lady~Pood

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I had the poison injection Aug. of 15. I have experience mega hair loss & am continuing to have it. I am saving all of the hair to take to the Dr. when I go again to show him. The Drs. have no clue what this drug does to you. It is a cancer drug (Hince chemo) used to treat prostate & breast cancer. You can go to the National Cancer Institute's website & look up cancer drugs & There It Is!! I printed it out & took it to my doc to read. Then & only then did he pay attention to my hair loss, thigh pain, hip pain, pain going down the back of my legs, legs & muscles so weak, I can barely put one foot in front of the other. It has been 5 months & 1 week since the one & only injection. I don't believe for one minute that the side effects will be gone at the magic 6 month mark. I have been searching for a class action lawsuit firm that is going after prolia ( amgen) Hopefully, I will find one. I just want this poison to get out of my system!!!

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Anne~thank you for that tidbit of info. The attorneys I am finding for class action suits are only interested in the broken femur with no pressure being put on it and for those that have had hospital bills. With more and more of us every day, they will eventually figure out they have a gold mine with Prolia. Probably would be interested in Rrd as she had cellulitis and had to have surgery for it. I sincerely hope and pray you do get better soon. You still have three weeks to go but you should be doing much better in the 5th month and you are not. Apparently, you are going to be the one that has to go through all 11 months of Prolia before it finally leaves. I am so very sorry for you as I know exactly what you are going through. Has the insomnia lessened at all? Hugs~Pood

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not one bit and I am on the maximum dose of Restoril along with small amount of Xanax, Melatonin and Trazadone. Still with all that poisonous stuff in my body, only getting 5-6 hrs. per night and wake feeling tired, drunk and my mind is constantly whirring. I have now in the last 2 weeks started to become weepy since being put on the Trazadone and it makes me feel drunk the minute I take it. I am at my wit's end!!

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Anne~I didn't like Trazadone either. That's why I opted for Mirtazapine. It seems to 'agree' with me much better with no hang over effects in the morning. Also, my brain must be a little strange in that I cannot have any Melatonin. It makes me wide awake and very 'nervous'. I just hope and pray that a miracle will happen and you will be 99% well on the 6th month mark. That's all we have with Prolia is Hope and Prayers. You are definitely in mine. Be well~Pood

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Poodle, thank you for your reply. After I read some of the comments, i knew my dr had made a mistake! I can just hope and pray that I don't have too many more side effects from this and will not be continuing the program. I made the mistake of never taking vitamins or supplements in my life although I have always exercized and taken care of myself. I just believe I broke my wrist badly because of the circumstances of my fall. I should have never agreed to be on a drug, let alone this one.

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Treva~it's too late now so make your Dr. stand accountable for every side effect you get. It's not a matter of taking supplements before. If one eats correctly they could be unnecessary until we get to a certain age. Now you have to have 1200mg of Calcium twice per day with each having 1000IU's of Vit. D and add in 1500 mg of Magnesium per week. Prolia LOVES Calcium and the human body really cannot store it except in our muscles so that's why there are so many aches and pains with Prolia. The more you can keep it from attacking your body the better. You could also ask for a IV of plasma to help your blood with the Prolia. It's quite expensive so don't know if your insurance would cover it. Don't be overly surprised if you get referred out to a cardiologist and a psychiatrist too. Obviously you know Doctors do not understand this drug very much at all.

I am totally unable to tell you how sorry I feel for you with this huge mistake. Stay well~Pood

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Victoria~the other 'stuff' in those capsules are supposed to help build or maintain cartilage. It's been a dubious claim for years with all kinds of different products coming out but end result was it never helped the cartilage at all. That is what happens to those of us that have osteoarthritis. Cartilage disappears so we have to get new joints.
Now you know what's all in there. Be well~Pood

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I have had 2 shots of Prolia, I have been experiencing many side effects, bloating, constipation, by bones and muscles aching so bad, Bad indigestion, stomach aches, eczema, always was able to wear perfume my whole life now I can't go near it. I have insomnia, my ankles swelling, my raynauds syndrome even worse. When I told my Dr. I had these symptoms, she told me not from shot go to my GP, my GP said he would never have given me this shot. I have taken the pills and had horrible side effects so they said shot would be better. I have had such bad quality of life for 2 years and I am DONE.. I am 63 years old and have always been active, everything is a struggle. Not until I started reading from group chats did I realize I am not alone and it stems back to these medications. Thank you for listening

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Hi,
I have been following all of these posts.
They are very informative and alarming for anyone being prescribed or already have taken this drug. It has some many risks and not many benefits from what I have read.
The two people I know whose friend and mother took the injection were pretty sick and continue to be sick.

In December, Prolia was recommended for me to slow down my progression of osteoporosis. It had returned after being off of Fosamax for two + years.

After reading and researching I have opted not to take this awful drug.

I was on Fosamax for 5 years and had great success, it slowed the bone loss.
I stopped it for two years and I began to lose bone.

What can you tell me about the drug holiday and going back onto a medicine like this.
I am seeing another endocronologist in two weeks, any info would be greatly appreciated and thank you.

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Mom~Generally MDs consider a year to be a 'drug holiday'. You really should discuss this and say I want my Fosamax back. It worked for you and you tolerated it well. Just be aware that Merck has been in a constant class action law suit with this drug and continues to be. It does seem less dangerous than Prolia tho.

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poodle, I hear what your saying about the other ingredients in OSAPlex. And thank you for the info. So far it has worked for me, it might be "mind over matter" but so far I'm ok with it. I'll continue to keep you updated.

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Merck is in a class-action suit over the Fosamx?

Wow!!


Thanks for the comment...

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I have had three doses of Prolia now and no side effects. My doctor is an Endo that only treats Osteoporosis. He has written books on it. My bone density has increased a lot. I previously had yearly injections of Reclast. That didn't really do anything. I'm happy with Prolia so far. I feel bad for you that have had terrible side effects.

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