Prolia Side Effects (Page 35)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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Prolia is 'modeling'. You don't want it no matter what your Dr. says. Just look at all the side effects. You will get them and many that are not listed yet. A very BAD drug.

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Has anyone been on or does anyone know of an alternative treatment for osteoporosis? I know I have to take something but what is a good "something"? I figure this site is as good a place as any to get good feedback from those of us who are going through osteoporosis. Thanks for any help provided.

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Pat, what your Doctor is looking at is Prolia. It is also called 'modeling'. Do NOT do it. It has too many BAD side effects for the benefit and when you stop it, your T-score will go back to where it was before Prolia so you will be suffering for zero reason. Doctors don't know much about Prolia yet. It's too new. Go to AMGEN's website and look for Prolia under the drugs they make and you will find many BAD side effects. There are more listed on the net on other sites about drugs. It supposedly only exists for those of us which the other previous drugs did not build up the bone. I believed my MD and did not check it out. I really should have checked it out very well before having 1 injection as there will never be another if I live through this one. Please do not trust your MD and do your own research on Prolia. Do you really want a very weak immune system? That you will get for 100% sure together with what else is listed. It's your body so you can say No Thank You to Prolia.

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Some of us do not have bad side effects due to Prolia.

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I received a PROLIA shot about 2 1/2 years ago and as the nurse was getting ready to inject me she said this may cause joint pain, and I said "Wait, I have FIBROMYALGIA" she injected me anyway saying oh, this won't make it that bad. Well, let me tell you,,the first 6 months were hell, as I was in bed most of the time sick with Upper Respiratory symptoms. My fibromyalgia is so much worse that I have to quit work and take a lot of very strong pain meds. I have particular pain in my knees and hips. My body stiffens up after sitting only 30-45 minutes. I am 60 y/o and most days I feel 100.

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I had a single Prolia injection 2 years ago and am suffering since that day. This poison permanently destroyed my immune system. I have pain in bones, joints and muscles throughout the body that made my life miserable. I am so sorry for all other victims of Prolia.

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I received my Prolia shot in late May after being told there were no side affects. I instantly acquired a rash on my face, weight gain around my waist, cellulite in my thighs, bloating, and constipation. I have to exercise to counteract these side effects, but no amount of exercise can remove these side effects, so I am hoping my system with return to normal after the 6 months. I will not submit my body to a second shot and think the cost is outrageous in addition to the drug being detrimental.

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Poodle: Please post the Amgen number you have mentioned. I have been on the Amgen web site and I am unable to find this number.

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Kitty~ The number for the USA adverse side effects is 1-800-772-6436. Outside of the USA is listed by country. It's on the upper right hand side where it says: Contact Us - one is for MD, the other is for us. First, you have to go thru the drugs they make and have Prolia open and then you can find the 'Contact Us' numbers. Notice to those in Canada who thought they were left out. You have your own number to contact AMGEN. Also, everyone MAKE SURE you contact the FDA too and with BOTH have a LIST in front of you of EVERY SIDE EFFECT you have with Prolia. When just talking to a nice nurse it could be easy to leave a couple out. Hopefully, this will help them change the formula or dosage of Prolia so we don't have so many severe problems. You are very welcome. Be well~Pood

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Lola, if you are still on here, you may want to try the super concentrated whey capsules that are supposed to help improve the immune system. From all that I have read, it is something our immune system needs daily to get it going well. I've just started on a bottle of 30 so I don't know for sure yet but anything in this world that will help the immune system I will use. I ordered them from a company on Amazon. The human body is unable to store protein and whey is a super protein. I don't know if Prolia will delete it as fast as I take it but I have zero to lose and everything to gain. I cannot go to a grocery store without getting very, very ill for days on end with severe diarrhea. It does not matter how much alcohol I put on my hands or cart. It's just in the air. Also, if you live in a large city, you may have a MD that works with people with HIV-AIDS and can get plasma transfusions which contain the B and T cells we need so desperately. We don't have one where I live. I believe they are called "immunologists'. The Prolia should be pretty well out of your body now so it possibly could really help you. If we had one, I would be in their office yesterday! Besides all the pain and problems with Prolia, we are almost like the HIV-AIDS people who have zero immune system and MDs can help them so why not us.

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Norma: You posted at the start of this conversation and I'm wondering if you ever recovered from Prolia? I hope you can see this and will reply. I would like to know about others who posted years ago also if you ever see this! Wondering about all of you.

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PROLIA should be taken off the market b/c it has far too many side effects that many people are suffering from. but I am not one to chase down the big pharma companies to have it removed ! People are having eye problems (which I now have 2 detached vitreouses, and one of them has stuck onto the retina-needing a surgery to be scraped off ! . It did not detach correctly! Also many have mentioned long bone pain in their legs-I have when turning to walk. Never had any of these things before. As far as I am concerned IT IS A SHOT OF POISON, the human body can not handle !!! On the other hand RECLAST can cause leg bones to crumble into many pieces or bone/teeth bone death. BUT, I have had this cancer drug many times, and have not had a problem YET !! Of course we are given smaller doses than a cancer patient, but it is still a chemo drug ! So until I have any problems with RECLAST, I will take it foer osteoporosis. Either that or become a cripple. No man made substance is good for human bodies unless you have a good liver to filter meds and working kidneys too. In saying this my kidney function tests have elevated to a high normal range of 0.8 N to 1.8 high normal of creatinine clearance. So this may be the cause of RECLAST, I don't know yet ! Good Luck to all who need these meds to live life. KNOW THE MED YOU ARE GIVEN !!!

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I had a single injection of PROLIA in May 2013 to improve my bone density score showing osteopenia. This poison didn't help a bit with osteopenia and compromised my immune system. I am still suffering with many side effects of this horrible drug...,

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Sorry to be negative, but I had my one and only shot on August 11, 2011. It will be 4 years on the 11. No change in anything. DONT TAKE IT. It changed me all over. Am now nursing a stress fracture. Have had problems with bones, teeth, muscles, skin, body temperature. I have tried to dismiss it but it is hard to do. Was really active but not anymore just do what I feel like
doing. Pray for strength.

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OK People, Will someone PLEASE tell me what to take in place of prolia???? I have to take something. Everyone is complaining, including me, but I don't know what to take and I have to take something. What is everyone else taking???

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Would someone Please tell me what they are taking in place of Prolia. What is a good alternative?

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My GPadvised me not to take Prolia as it is still a relatively new drug and after reading all these postings I'm so glad I took his advice! My rheumotologist is the one who recommended it and as he gave me the Prolia brochure he said "don't read about the side effects; ignore them". I used to take Fosomax and then Actonel - nothing made my osteoporosis better so on the advice of my doctor, I stopped. I now take only calcium (1200mg) with vitamin D (1600mg). I lift weights to try to build bone. But that's about it. How about you?

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I just want to say Hallelujah for your GP who evidently has a brain!!!! Sure wish he'd spread the word to other doctors. Your Rheumatologist on the other hand shouldn't even be in business or have a license! That's just awful that he/she would tell you to ignore the listed side effects! I wish you well.

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Thanks, Louise. I've never been back to the rheumotologist (I only went once for a consultation) but they did call many times after that to see if I'd like to schedule a shot. How nice of them. It's a big money maker for these doctors.

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Calcium and vitamin D. I have added B12 on my own. Nothing ventured, nothing gained. My GP has been very apologetic for the pain I'm in. Oh yes, a small dose of Cymbalta as I have neuromuscular disease and neuopathy. Good luck to all. AGAIN, DON NOT TAKE IT!

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Would like to know if anyone had side effects from Prolia but they went away - and how long did it take for that to happ...

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I had my infusion Mar 4 2015. I have experienced severe stomach pains, leg pains that wake me up at night, a horrible dr...

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I developed a red burning itchy lumpy rash after one injection of Prolia. Mainly on face neck chest arms scalp. Anyone e...

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I'm a 59 year old female, diagnosed with Behcet's Disease and I use Prednisone for treatment for my weekly flare...

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I am 60 yrs old and suffer from osteoarthritis, osteoporosis, and myofascial pain syndrome. After discussing with my end...

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I am 81 and had my first Prolia Shot May 7, 2015 and after three weeks I have developed a red rash looking sight UNDER t...

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Aprox 2 weeks after the prolia injection I started to experience nausea and weight loss. Also, loss of appetite and a ke...

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I am not going to have my next shot of Prolia due 11 June. I have already had two injections and lately have suffered ho...

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I am a 57 year old female who has -2.5 bone density scores on hips and -3.4 in the spine. I used Forteo for 2 years, but...

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What does the pharmaceutical people of Prolia advised regarding its side effects? ## Hello, Lala! How are you? They do w...

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