Prolia Side Effects (Page 34)

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I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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661

I'm so thankful when people post their outcome on here after months or years of Prolia. I wish we could know the outcome of everyone who has the injection no matter how long. I always wonder if there's anyone who fully recovers, conditions continuing to worsen, did you get anywhere with anyone listening to you? The side effects are going mostly unreported by medical professionals and the reporting should NOT be left solely up to the patients even though it IS left up to us.

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662

I have been preparing for dentures; getting teeth removed and some surgery for bone coming out of my gums. Friday I was told there will be no dentures, the bone surgery has not healed in a month, more bone is extruding. I'm told it is due to an ingredient in PROLIA. Any more extractions will have the same result. Just as it inhibits bones from healing in the rest of my body, so it goes for my mouth. I was told by the surgeon that it did not matter it I quit taking it, it's in my bones now. The only teeth I have remaining on top, 4 of them, are in absolute disgusting condition.

I was bulimic for 33 years. I'm 67 years old. My osteoporosis is -3.4. So, I created the osteoporosis by being a bulimic. In April a blood test revealed a CEA level of 9.6. CEA is a marker for cancer, 3.4 is normal, 9.6 usually means cancer is somewhere. A subsequent blood test had a CEA level of 9.3. I've had a colonoscopy, EDG, Mammogram and Lung CT, nothing has materialized. The news from the dentist was shocking, so I looked on the internet for any POLIA legal suits and found this site. Something has to be done! A side note: I take several pain medications for several spinal degenerates; Fentanyl, Lyrical and hydrocodone.

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663

I am so sorry about what you are going through. Prolia will always be in your body but I've read from other posts that by 18 months you should be pretty clear of Prolia and get your immune system back and when you stop taking Prolia, the bone built up from Prolia goes away again so we are going through all of this for NOTHING. I know for certain I will never have another injection. We have cancer in our bodies all the time. With a healthy immune system it usually kills the invader cell. With Prolia our immune system is very weak and unable to fight off anything. That's why we get anything that's going around. I have found out that it is very helpful to contact the nurses at AMGEN, the corporation that makes Prolia. The more they hear from us, the more likely they are going to change or delete Prolia. The government really doesn't care. Just another bureaucratic agency but AMGEN does care so call them!! They have different phone numbers for different places in the world. Keep calling them with each and every new problem. Prolia is dangerous as it is made from animals, not chemicals. That's why it is called a 'biologic'. Have you used other drugs like calcitone salmon? Even Reclast and Boniva are better than Prolia as far as side effects go. Hoping you do better. Pood

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664

I am so sorry to hear of all your misfortunes due to the Prolia shot (s). How many Prolia shorts did you have? I only had one, but also have bone, teeth issues, this is why I am asking.

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665

Glad to hear you have not had any side effects. That is encouraging. I had my first Prolia shot today. After reading all the horrible side effects from this site it's frightening. Hopefully I will be like you.

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666

When did you get your first injection? I got first one today

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667

Elyse. Please Please keep us all informed from time to time as to how you are.

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668

It had nothing to do with what you did previously. AMGEN states that Prolia causes basal cell carcinomas (skin cancer) which can then make it's way inside the body. You probably have a little patch someplace you cannot see and it has invaded your body. This is why you are showing positive. Not being a MD or a nurse -- just putting 2+2 together to equal 4. Have your Docs check your skin really, really well. They will find it. You may have to go to a large city to get an excellent Oncologist (cancer Dr.). Just about all cancer is treatable now so please don't fret over that horrible 'C' word.

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669

I have been receiving shots for approx. 4 years. Other than getting cold/sore throats where I never did before. I have not experienced any serious side effects. I take calcium, vitamin D and magnesium regularly. My doctor has recommended 2000 units of vitamin D. I have also changed my diet slightly to help my body absorb the calcium. Coffee is kept to 2-3 cups per day and I try not to drink it with meals when I have calcium. I have switched to herbal teas. Bran and soft drinks are no longer part of my diet because they affect the absorption of the calcium.

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670

Had my first Prolia injection on June 24th. So far no problems.

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671

I am 70 also. My rheumatologist had me on 10-20 mgs of Pred/day for a year which ate up my bones. Then she gives me this poison to supposedly build up my bones. There will never be another Prolia injection in my life. Eventually, someone will come up with a different drug that will work and not kill us. I only had the one injection the latter part of April. I cannot go to the grocery store or be near other people. I get whatever they have. I'm trapped inside my own home in misery. I bought some Co-Q10 as one person posted here that it helped her. Maybe it will help me too. I also take narcotic pain killers to dull the pain, not get rid of it. I'm in the care of a Psychiatrist for the insomnia part and a Cardiologist for another part. My Primary Care Doc doesn't know what to do about it. I wanted to go to PT, but I would have to be around other people so that cannot happen. I used to have a life but I would not call now 'living'.

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672

I'm sorry for your problems. I have been fighting with the side effects for 10 months. The low dose Prednisone is the only way for me to stay functional. Yes, I know that it is very bad for my bones. I really get little help from the Drs. Nobody seems to know how to treat a Prolia allergy. I have had 2 prolia shots, the last on January 20, 2015. Never again. I can only hope that it will eventually work its way out of my system.
I am also 70 and was healthy and active. Now I am neither.

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673

Also, total hip replacement and total knee replacement are off until I get my immune system back which could be as much as 18 months from now. Dealing with the side effects of Prolia and the definite pain of needing replacements on top of the pain from Prolia makes life very, very miserable. I cannot even go to a grocery store without catching something that's in the air. Satan, himself, could not have devised a worse life than life with Prolia.

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674

Prolia should be taken off the market. Its a bad dangerous drug. Maybe a class action lawsuit would get their attention. Where is the FDA whe you need them ?

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675

Fan, you are the first positive thing I have heard on here. it is nice to hear positive also, thanks.

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676

There is a type of shot that is called a "Modeling". (I'm pretty sure that's what they are called) . It was my first choice but very new 2 years ago. My doctor is looking into them as an alternative.

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677

I've had 3. Before I started the dental work I had only one. I did not receive the medical information that comes with the shot.

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678

I guess I am lucky. So far no side effects.

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679

Pat, I read yesterday that your dentist should have you on a strong dose of amoxicillin and some kind of a mouth wash. The two combined, kill all the bad bacteria in your mouth so that it will heal. Has your dentist done this or just treated you as a 'normal' patient? The reason I was looking is because I am sure I'm getting the ONJ. I can only have soft foods and it hurts like hades to yawn. This is 2-1/2 months after injection 1 which is not supposed to happen but it does seem to be.

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680

Hi, I had the injection 6-15-15, after about 5 or 6 days got a rash on my chest, didn't think anything about it, but now its spread to my arms and the back of my head iches also...does anyone else have this and will it go away?

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