Prolia Side Effects (Page 28)

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I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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541

Hi Benny: Sent one letter to FDA. Will send another letter soon. Please post and let us know if Amgen has returned your phone calls.

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542

I too had suffered consequences from the side effects. I would join a class action suit. Now I have been diagnosed with necrosis ONJ and it's getting worse. I don't know what to do.

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543

My dad went into the hospital again this week on Monday. Several more side effects of this drug that doctors arent familiar with until you tell them to research on line.!!! Sad! Amgen employed drug reps are NOT doing a good job at informing doctors. Dad was admitted to one hospital as as of this minute is being transferred to a bigger hospital where more specialist hopefully can figure out what to do for him. I reported earlier, please see the problems up until now. Dad has a severe case of pneumonia, a blood clot in his leg, had a mild heart attack ( hmmmm wonder if that could have connection to his low blood calcium level that Prolia causes!), he has horrible muscle cramps and jerking! Amgen is just an awful company to deal with, I've called them twice and reported all of this then I called the FDA to make sure they reported this. Its a long process to figure it out even though legally they are supposed to report to FDA but believe me, I'll take the time to know if they've reported it or not and if they haven't there will be further action. Dad was close to death yesterday, I hope he can pull thru. All side effects started 3 days after his 1st injection. BEWARE and warn people of this drug.

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544

Were you diagnosed with necrosis of the jaw after just PROLIA ? Because RECLAST can do the same damage ! Seems like we are all guina pigs for all the big pharmaceutical companies !!! Being a nurse, I have tried many of the meds I prescribe to others, therefore I know what the patient would be feeling. However in this new age of meds, there are just some I would never take !! My problem is that now I am due for another round of RECLAST,(haven't had any in the past 4 years). My doctor doesn't know what to give me, she feels nothing is safe. And she thinks she's just reaching by using RECLAST again w/me. So we'll see what happens next. The drug companies do not have long enough trials of anything used for osteoporosis, they present the doctor with statistics, and only after the doctor uses these meds, dthey find out all the side effects-and then it is too damn late, b/c they can't take it out !!! I feel sorry for all who have had symptoms, as I myself suffer. But I have so many things wrong, I really don't know what to blame things on anymore. Good Luck to all !

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545

I had Fosamax for 4 years, Reclast for 2 and Prolia for two. I am not sure when I became aware of the side effects. At this moment, I don't want to take any more meds. This is very frustrating

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546

I want to know how many persons have developed ONJ drug induced??

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547

Dad is developing blisters! Blood blisters on the back of his hand, on his cheek and on his shin! NEVER had blisters before and certainly never in these places. Horrible Prolia. I am just sick about my dad. Please see my previous 2 posts. Someone please help!

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548

C Louise , 3 wks after my second injection I had low potassium requiring I take supplement till levels returned to normal . I believe some of those side effects may be what is the problem with your father . How is his potassium levels ???

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549

Joyce B. Thank you for the reply. Dads potassium has been okay so far but things are changing for him daily. I will keep track of that as well and thanks again.

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550

My oncologist prescribed Prolia and told me to watch for side effects. I had the shot on Dec. 31st 2013 and didn't seem to have any side effects. But by July when I was due again my jaw hurt. It didn't hurt bad and I still don't know if it was from the Prolia, but I suspect it was. I would never take another shot of it nor would I recommend it to anyone else. I saw my dentist in August and he didn't see any connection to the drug?? he recommended I use hot and cold packs and if it doesn't stop the pain he would have me wear something in my mouth at night and see if that helps. I've not contacted him again, I'm just hoping it goes away.

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551

True, the jaw pain is typical. I had it and eventually it turned into ONJ. I don't know about your case, but any use of Fosamax, Reclast and Prolia are very detrimental to the health.
I wish God's blessings. Avoid these medications at all cost if possible.

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552

my 89 year old mother was on prolia and got a severe case of cellulitis which she was septic and ended up getting her leg amputated was in the hospital for 6 months has a prostetic leg but cant walk to well and is wheelchair bound this drug ruined her life

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553

Where is the FDA? How long do we have to suffer?

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554

Have you reported your issues? Might have to get lawyers
involved. Of course, hard to get a Dr. to admit that it is/was the problem.
They told me I was having a stroke! Not!

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555

DP girl: Sent a letter to FDA last year. Just sent another letter to FDA on updates. I can only hope that if enough of us report the FDA will review this drug.

Thank you for your response. I wish you the best and hope you are on the road to recovery.

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556

I was given prolia because I only have one kidney and could not take other meds for osteoporsis . When I first saw Rheumo doc I mentioned concerns about this and supposidly she spoke to kidney doc and she approved . Last week I saw kidney doc and told her how terrible it had been and she told me people had to go on diaylis because Prolia caused kidney shut down . I now know Rheumo doc never talked to her , she would not have approved it for me .

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557

I have had my second shot of prolia the begining of Nov. and now I have itchy spots on the left side of my back and itchy blotches on my left breast. My hot flashes are worse and sometimes my heart races. My first shot was fine, no side effects. i don't kno if I want to continue them. I'm hoping the side effcts don't last too long.

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558

This time last year after getting my shot in Oct I was near death . My lung doc was able to get me straightened out . I had one year follow up yesterday and told him it was amazing how much better I felt and not once case of bronchitis this year being put on oxyagen .When I mentioned to Doc I thought it was no doubt all brought on by shot of Prolia , he totally agreed and said NO DOUBT about it . These docs giving shots know the chances they are taking with us and NEVER again will I be quinea pig for anyone !

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559

Normally, Prolia three year average bone density increase spine 8.8% and hips 6.4% per Amgen.

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560

Perhaps it's time to leave email's with the National Osteoporosis Foundation? It couldn't hurt to let them know your Prolia experience.

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