Prolia Side Effects (Page 11)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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REPORT

My report is above, but I forgot to mention that I did not repeat that lethal injection and am VERY wary of mendication ever since. I hope this eventually will lead to a class action suit, as I have sufferes for mor then a year. Even hand therapy has not helped. Now I am trying acupuncture. I am at my wits end. Only codein helps to cover the pain in my hands.

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I'm wondering if all of the people who are experiencing problems with the Prolia injection are smaller, lighter people? Like maybe between 100 - 115 pounds? Maybe the one dose shot is wriecking havoc on the smaller people? I may not post very often because i am keeping a personal log. I laready told my gyn that i will not take my second shot. The bone growth turned out to be a ganglian cyst, and I am still convinced that the growth had to do with Prolia. I'm still experiencing pain in hips, knee joints, and ESPECIALLY pain in my front upper thighs. I am convinced that Prolia is not good for one's body. My lower back pain also is chronic and I've never had so many aches in my body as since the shot. I have upper and lower jaw tension and dull aching as well. I made sure that both my GYN and internist know that I believe that my pains are due to the shot. Hope everyone is keeping good documentation as we may all need it one day. Mahalo and take care, everyone!

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That's an interesting idea - that weight is a factor. I have not had the severe side effects that you have experienced, but I weigh 146, so that may be why. But I have had enough problems that I will not have another injection unless I am desperate.hkkob

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I don't think weight as any thing to do with the symptoms.
I have had 3 shot and my weight as around 170-180 and terrible side effects.
It's over a year now since my last shot and i'm still suffering, hands, legs and back are still hurting.

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The weight theory would not apply to my mother who has been experiencing bone pain, muscle aches, sores in mouth. She weighs around 175 lbs. She had her first injection of Prolia on July 16th and struggled with the above side affects for weeks. She just recently stopped have sever pain in her bones. Needless to say we will not be having a 2nd injection.

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Thanks to all of you who have shared your experience with Prolia. I read all of the comments as well as some other info received from my Doctor. I told him I will not take it - and would like to try something else. I am still doing research. I am age 74, 5'8' and about 137 pounds...never had a weight problem - fine bones and bone density shows I am at high risk for spine fracture. Any suggestions will be appreciated....thanks a bunch for the help.

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People recommend reading Your Bones by Lara Pizzarno. She has lots of good info on vitamins and supplements to take. Strontium Citrate is one.kofdc

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I have an appointment with my endocrinologist for my first shot of prolia at the end of next month. Thank you so much for all the warnings. Osteonecrosis had always been my biggest fear of the drug but clearly it has so many other issues. I feel very sad for all the problems this drug has caused so many people. I have previously taken actonel and protos. My endocrinologist says that I am lucky to be alive after taking protos as I had a clot in my leg and developed a bleeding disorder after taking it. I am definitely cancelling my appointment for the injection after reading so many helpful postings. I hope the drug will soon be out of your system so that you can enjoy life again. I am still not sure what to do about the osteoporosis but feel that suffering a fracture would be a minor problem compared with the effects of the drugs given to prevent it.

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Dear Mary, if we were able to save one life of untold miseries and health issues, when even Prolia - doesn't know what the results will be. Its been 17 months since my 1st shot - and I have the same symptoms as from the beginning - still have terrible bone pains - bony growths on the gums, in fact the bottom jaw is hurting me and the gums, developed new red blood blisters on both legs - dermatologist checked it, have heart issues - hot and cold uncontrolled body temps. So many other things, its a horror story. Thank you for listening to our stories, they are real, an injection once in, you can't get it out of your system. God bless, Faith

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Mary, I am like you. I found this site before taking the injection of Prolia. When my Endo dr. told me it was a twice a year injection, this sent us a red flag to me. Something that can help with only 2 inj. a year, had to be very powerful. Yes, when I started reading all the horror stories of what this drug causes, I was so glad I went with that little voice in my head. It pays to listen to your inner feelings.

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All good info and just reinforces my decision to avoid all these drugs as I would deadly poison. I hope those of you who are suffering side effects will recover soon. I love my physicians but as someone else pointed out, doctors receive very little pharmacological education and essentially no nutritional education and tens of thousands of new drugs come out each year. No one could keep up with them so they rely on the drug reps for their info. I believe most physicians prescribe these drugs, not from a motivation of personal profit, but from lack of information. I am 74 years old - was diagnosed 25 years ago with severe osteoporosis but have never had a fracture. I have lots of drug allergies and am a nurse practitioner who has seen tons of drug reactions and long-term side effects in my patients from prescription meds, so I tend to be very cautious about putting any medications into my body. Over the past 25 years I have received very heavy pressure from my physicians to take these drugs and have refused them all. Even though I have obviously not suffered by this course of action, it is something new every year. Last year one of them insisted that I take Reclast. I refused so this year he is insisting that I take Prolia. My DEXA scans, as I said before, show no fractures EVER, and even show some improvement in all the tested areas without any prescription drug treatment since my diagnosis but my doctor says it just "isn't worth the risk of getting a fracture". Is he serious? What about the risk of all the things you folks are reporting, and that even the manufacturer admits are risks? My personal advice, in which I have been guided by a Pharm D, is first and foremost to keep your Vitamin D levels up in the 75-100 range. I truly believe that since physicians were not aware of the risk of low Vitamin D levels until the past few years, that it might explain a lot-and not just bone health. My own level was 4 when they started testing me. Secondly, do not take mega supplements of Calcium. My physician told me to take 2000 mg a day but the Pharm D says mega doses have been implicated in calcification of the brain, blood vessels, kidneys, etc. (which I confirmed through research) so get the calcium from your diet. I also take Strontium, a true miracle element. If you aren't familiar with it, here is a link where you can read more:

worldhealth.net/news/strontium_breakthrough_against_osteoporo/

I personally think that you haven't heard much about it because it is not a money maker for the drug companies. You can buy it on Amazon really cheaply. Nutrition is seldom mentioned by physicians as a treatment for bone health but is absolutely crucial and there are a number of good books out there on diets for strong bones. You must do weight-bearing exercise of some kind. Even if you aren't athletic - and I'm not - there are other activities you can do. I especially love my Wii games. This strategy has worked for me. I am active, on no prescription meds at all, have no joint or bone pain and I want to keep it that way. I have a feeling that these drugs persist on the market because most side effects do not get reported to the FDA (and also because it is primarily a woman's disease). This is probably because patients only report them to their physicians and they, in turn, dismiss them as not due to the drug or never get around to reporting them to the FDA. I think it is quite interesting, however, that over the years, they have quietly stopped prescribing some of the drugs when the full story comes to light. For instance, bisphosphonates have steadily lost market share as the newer, more powerful drugs (incidentally with much longer half-lives for us to recover from) hit the market and the serious adverse results of bisphosphonates become known. Unfortunately, no one really knows what the long term effect of drugs such as Prolia will be but I think it is probably safe to assume that the long term effects of these more powerful drugs will be even more devastating. I also highly recommend the book The Myth of Osteoporosis by Gillian Sanson which I bought on Amazon - a real eye-opener. Stay strong! It is difficult to go against the advice of a respected and trusted physician but in the end, it is your body - not theirs. It is both your right and your obligation to your loved ones to make informed decisions about your health care. Do your homework!

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Thanks Daphne - I downloaded Lara Pizzarno's book "Your Bones" onto my Kindle...and have only read part of it so far...I already learned that I should have been taking Calcium Citrate - not Calcium Carbonate...due to acid reflux and the meds taken to help reduce stomach acids....so I guess the Calcium has not been absorbed..'cause it was the wrong type! And I am considering Strontium Citrate -- but what about side effects ?? I am taking Vitamin D - also since low in Vit B12 - I take it as well. Gee I am glad I found this forum. My heart goes out to all of you who have taken Prolia... I have alerted my Family Doctor about the side effects of Prolia and my reasons for refusing to take it. At my age any suggestions are appreciated....I have made my own Weight Belt - and I have been wearing it to get more weight onto my hips -- and so far no low back pain - so it must be helping somehow. Thanks a bunch!

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Hey Schatzie - Thanks for your post -- lots of info for me to think about. We are the same age -- I am considering Strontium Citrate -- but how much should I be taking ? Can you suggest anything. I am reading Lara Pizzarno's book "Your Bones" and have found it very informative.....I have been taking Calcium Carbonate for a number of years -- now I see I should have been on Calcium Citrate.....why don't doctors know this ? Thanks for sharing your info....and keep strong!

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Please help me with your experiences. After only 1 day, I have back, joint and muscle pain. I am very tired. Has anyone had any experiences on how to minimize the effects of the Prolia shot? I already was suffering back, hip and foot pain. This made it all much worse. What has helped you to endure the side effects?

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I think the dosage of Strontium Citrate is 640 mg not with calcium. so many people leave it on their bedside and take it when they get up to go the bathroom in the night. you don't have to stay upright after. I am not aware of any side effects - and don't think I have experienced any.
I buy it online Doctors Best Bone Maker - best value.
Hope it helps!

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As to the dose of Strontium - if you read all the comments on Amazon, you can see what other folks are taking and what their results have been. As Daphne said, 640 mg is the most usual dose (which is what I take) and as she also said, not WITH calcium. Though you must have adequate calcium intake, either from a supplement or from your diet, for the strontium to work, calcium supplements should not be taken at the same time as the strontium. Most take calcium supplements in the AM and the strontium at night or vice versa. Since I have yogurt or almond milk at almost every breakfast, both of which have high calcium content, it works better for me to have the Strontium at night. I have had no side effects and have read of none. Please - everyone who has had the Prolia and is experiencing severe side effects, ask your doctors to submit this info to the FDA. We have to let the public know what is going on with these drugs. I just happened on this board but the great majority of potential patients will never see this. If it is published by the FDA, however, the doctors may stop prescribing this stuff and we may be able to help someone avoid what many of you are experiencing. It breaks my heart to read of the pain and suffering so many of you are going through just by following doctor's orders.

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Hi: My six months was up on August 13/12 and I did not get the second shot. I am in so much pain this week I don't know where to turn. I am taking Oxyconcept for the pain but I don't like the feeling I get with it. It does ease the pain a little but it makes me more tired than I am already. I am seeing a pain specialist this week, hopefully he can give me some advise. I have also started taking strontiium with no side effects. My Dr. says there is nothing one can do for all the problems we just have to wait until the drug wears off. Who knows how long that will take. I am not getting much sleep these days because of the pain. Hope everyone feels better soon. Irene

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Dear Sister, I have been prescribed Tramadol 37.5 mg which I take reluctantly 1 a day - it has a lot of side affects, but it helps. It also makes one very constipated, which is unpleasant. But the tiredness, and the pain in the bones, now I have jaw pain which is new and my gums which are still swollen 17 months after 1 shot are worse then ever. When I was told to go to ER 1 month after I received the shot, nurse at Prolia Vital thought I was having a stroke - the docs there didn't know what Prolia was, and after checking stated, it was too soon - none new anything about this - I had blood tests, cat-scan for the head, they didn't find anything and send me home. I went back to the hospital and got my papers I discovered that someone read my cat-scan and it showed I had fluid in my left ear, also a cause of Prolia which can cause dizziness and pain. Since Prolia doesn't know how long it will take - I have no answer, except my spine is hurting me every day and each day is pure misery.
Wish you all the best

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I had my first and ONLY Proila injection in December 2011. I'm still having quite a bit of discomfort from the shot. Some days are better than others, but on a whole I always have pain. I keep hoping this will ease as time goes on, but it has been over a year now!!! When mentioning this to the doctor, she looks at you like your crazy. I honestly think doctors NEVER research this drug. I would never recommend this drug to anyone. In fact, when I talke to people who are having problems with osteoporosis I advise them to do research on this drug before allowing the doctor to administer.

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Dear Joyce
I had my last shot last September, i had 3 of them.
Still suffering just over 1 year later, so you might have to wait a little longer before life gets better. I now have the occasional day were the pain is a little less but still far away from normal.

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