Osteoporosis Forums

I was diagnosed with osteoporosis in 2008, 9 years ago. I was taking alendronic acid for 3 years and have been on a drug holiday for nearly 4 years since. I'm due to have denosumab treatment shortly but am anxious of the side effects after reading patients comments. My bones have reverted back to the condition they were in 9 years ago, I suffer from a very weak bladder due to surgery and have irritable bowel symptoms. Should I seek more medical help as bladder and bowel constipation are two of the side effects this treatment may cause from what I understand and are there other treatments available which could help me please? Also, what is the maximum number of years you can be on this treatment and how long should I expect to live taking this new drug? I go to the gym regularly, eat...

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I have been on Tymlos for 12 months. Over the last few months I am having problems with high blood sugars and a high A1C. I have never had a problem with this before. I am wondering if anyone else has had this issue before? My doctor put me on medication for pre-diabetes. ## Hello. I have not taken the meds you are on but I have a somewhat similar issue aside from that. I had a triple bypass several months ago . I had blood work done and my Dr is saying I have high blood sugars and A1C. He put me on Metformin! I have never had diabetes! ## Elevated blood sugars are not listed as a known side effect of Tymlos. Typically, the FDA warns that it may cause nausea, dizziness, headache, and palpitations. Ref: Tymlos Information DIabetes, and PreDiabetes can develop at any age, but making some ...

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I was taking alendronate 70MG 3 month ago, but this week I got a lot of side effects such as: diarrhea, abdominal & stomach pain, heartburn, general feeling of discomfort or illness, full or bloated feeling. I just ordered 3 more months but with those severe side effects, I'm planning to quit. ## Hello, Steve! How are you? Those can be normal side effects of this medication, as listed by the FDA. You may also experience headache, dizziness and joint/muscle aches. Have you consulted your doctor? There are other medications that you can try to see if they don't cause you as many problems. ## I was on Alendronate for 20 years and have been suffering from side effects for 3 years off it.

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Had muscle pain for 2 years and 10 drs didn't check the side effects of alendronate. I'm off it 7 months and still have muscle pain. Does anyone know how long it takes? ## Side effects from alendronate? Mine is muscle atrophy. ## Hello, Ann! I am very sorry about what you experienced. These medications really do a number on some people that take them. Has your doctor ruled out any other possible cause for the muscle pain? While it can be a side effect of this medication, if you stopped it 7 months ago, there should be some improvement by now. The FDA lists its other typical side effects as possibly including nausea, dizziness, headache, and stomach pain. Ref: Alendronate Information Are you on any other medications? ## I stopped taking alendronate 3 years ago and am still having...

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First shot and now I have joint and muscle pain within 5 days. Have RA and my doctor is saying this is just a flare, but it feels so different. Anyone else on Evenity for bone building? ## The FDA does list joint, and muscle pain as being common side effects of Evinity, along with fever, weight gain, and insomnia. Ref: Evenity Information Is this the only medication you're currently taking? ## I was on Prolia so when I started Evenity I got the shots in my stomach. Woke up at 2:00 am with such pain in the shot area. Is it better to get it in the legs? Anyone else have this problem? ## I have RA also but I’m on cimzia for that so the evinity didn’t bother that. My problem was the pain in my stomach at 2:00 in the morning. I go for my next shot at the end of the month and ...

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I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none. ## Prolia is used to treat or prevent Osteoporosis, specifically in post-menopausal women, it contains the active ingredient Denosumab. I'm glad to hear you've had no side effects, however, they can include: skin infections, jaw bone problems, irritation at the injection site and hypocalcemia. Read More: MedlinePlus Does anyone else have experience using this? ## How are you doing now? Still now side effects? Please let us know ## I was given a shot of prolia 8 days ago. I am suffering from pains in my arms and legs, digestive discomfort and nausea. Has anyone had this shot as I would like to know how long these side effects last as I am unable to work at...

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I got one shot of Prolia in late December 2022. In February I developed a tooth infection and fracture below the gum line. It needs to be extracted. No one seems to know anything about this. I am so worried about jaw necrosis. Oncologist who gave me the drug said wait at least 3 months, my former oncologist said 2 months. Everything I've read online says to wait the 6 months. But I have an infection and I'm concerned about how that may affect my heart and my dental health. Has anyone had a tooth extracted after one shot of Prolia? ## I’ve been having those shots since 2017 and so far had no problems. You’re letter scared me. Sorry to hear about your pain. ## Regardless of whether or not you can have the tooth removed, yet, you can still treat the infection via antibi...

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I've just recently had my second Prolia shot. So far so good...a little back pain. I continually have stress fractures on my feet and have also taken fosamax. My current problem is hair loss & I wondered if anyone else was having that problem? ## Hello, Gracie! How are you? No, this isn't listed from what I can find, but I'll check a couple more sources to be sure and post back. Are you on any other medications? How old are you? ## I'm 57. On no other meds except evista and a pill for reflux. A friend sent me a website that stated that there was a study with some hair loss ## Yes, after my second shot of Prolea, I had two UTIs, fatigue, huge bumps under the skin on my face and all over my scalp, an array of unexplained symptoms like peripheral neuropathy (not diabeti...

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I have been taking Prolia injections for 2 years now. Over time, I've noticed that my sense of taste and smell has diminished. As of 6 months ago, I have totally lost the ability to taste anything sweet. Desserts of any kind taste bitter to me. I have also been on Levothyroxine (Synthoid) for a few years prior to starting the Prolia, but the loss of taste and smell has been significantly worse since I started the Prolia injections. Has anyone else experienced taste and smell issues taking Prolia? ## Yes I haven't any taste. Feel a little hungry. Then no taste and don't want it. Also my shoulders are really hurting, then goes to my head. I have several health problems but I know my body. Was not a candidate for Prolia at all and I would not take it again. Best of luck to you ...

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I had two injections of prolia and then my doctor said we could stop, because I was well - that was 2 years ago. Now I had a test and it seems my results are worse again. My doctor said to start with bonviva again (medication I used before prolia). I take calcium 1 calcimagon-d3 forte every day. Are there other therapies? I had no problems when I took prolia, but I don't want it anymore because of the side effects. ## I found the post on Side effects experienced after a Prolia injection very interesting as I have been having this injection every six months for osteoporosis for the last three and a half years. I have had this injection sometimes in the arm and sometimes in the stomache depending on the nurse/dr. injecting. I must say I have never had any reaction either in terms of a...

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I took once monthly Boniva for the first time and now I am having trouble reading. I can't read type that I was able to just days before. It started from the first day I took it. My doctor said to go to eye doctor and she is taking me off of it. Anybody else had this affect their eyesight? I also definately had frequent urination the first 2 nights. ## Yes and still do after stopping and seeing eye doctor, getting new lens. I also had a lot of joint pains aches. I just takes Caltrate ## New lens, like for glasses? So, it didn't go back to normal even after you started it? That's scary. Thanks for taking time to let me know there is somebody else it has done that to. ## Eye problems are known side effects of Boniva, according to FDA reports, and in most cases, they go away, a...

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I am not going to have my next shot of Prolia due 11 June. I have already had two injections and lately have suffered horrible side effects such as terrible constipation, leg and foot cramps, skin rashes, stomach pain,etc. I also found out that Prolia works by stopping the body's own bone production, causing old bone to become denser. This results in probable fractures due to old brittle bones, Prolia also causes low calcium levels in the blood, a weird side effect seeing it is supposed?to strengthen boned! ## I am sorry for your pain and suffering, I am on the "high risk list" for fractures, so having a product that has rebuilt bone mass in MY body is a blessing. No, I don't like the side effects, but I don't want to be in a wheel chair either.. Good Luck To You and...

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My family income is not below the level required for assistance from the LillyCares program. I'm 67 years old and have just retired (5/31/23) so now I'll be on a Medicare Advantage program. Is there anything else I can try to help cover the extremely high cost of Forteo?

Does anyone know of a small travel bag for the Teriparatide pen, which will keep cool for long periods of time? I have received one, but it's very large and will not fit into my hand luggage for the plane. ## You might want to try looking for an insulated carrier for insulin, from what I recall when my ex-husband and I would travel with his, the ones he had were the size of a small men's wallet, just a little bit thicker. The FDA lists the typical side effects of Forteo as possibly including nausea, weakness, leg cramps, depression, and back spasms. Ref: Forteo Information Have you tried asking your pharmacist for help?

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What are the side effects from taking Fosamax? ## According to MedlinePlus, there are numerous side effects associated with the use of Fosamax, including but not limited to: nausea stomach pain constipation diarrhea gas bloating or fullness in the stomach change in ability to taste food headache dizziness swelling of the joints, hands, or legs muscle spasms, twitches, or cramps Ref: I hope this helps! ## Body pain and weakness. Have taken Fosamax 3 times. All of a sudden a "wave" comes over me. I get real weak and I feel like I have the flu. My bones, joints, skin, hair all ache. I have to take 2 aspirin and go sit down. Then being so week, I fall asleep. After approx 30 minutes I feel better and carry on! Does anyone else have these symptoms? Never had this prior to taking the...

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Has anyone taking Actonel 35 mg experienced severe joint pain? ## have you experience hand shakes? ## Actonel Side Effects: SIDE EFFECTS that may occur while taking this medicine include fever, chills, stomach pain, joint pain, headache, nausea, or diarrhea. If they continue or are bothersome, check with your doctor. CONTACT YOUR DOCTOR IMMEDIATELY if you experience severe joint pain, muscle pain, painful swallowing, severe heartburn, pain or swelling in the gum, loosening of teeth, or numbness or feeling of heaviness in the jaw. An allergic reaction to this medicine is unlikely, but seek immediate medical attention if it occurs. Symptoms of an allergic reaction include rash, itching, swelling, severe dizziness, or trouble breathing. If an allergic reaction to this medicine occurs, seek...

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Hi. Before I found out I had developed osteoporosis (recent DEXA scan) and had to have the PROLIA injection I had already had braces fitted on my lower front teeth. I read that prolia inhibits bone regrowth and I cannot find any information about whether the teeth will actually move and the bone in the jaw be recreated as it should so the teeth stay in their new position. I rang AMGEN to ask them and they could not give me any advise. Has anyone continued having dental brace treatment during Prolia treatment and has the dentistry results been positive? ## I would be interested in the too I would like to get braces. Had 2 injections now. Please share what you find out.

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I have been taking Forteo for 5 days. I am light headed, feeling of drunkenness, shaky, headaches, nauseous, disoriented, and some blurred vision daily. My doctors office was closed on Friday and at this point I'm scared and not sure to continue taking or not. ## The symptoms that you are describing are all listed as known side effects for forteo. They should only last for around 4 hours, however, they also state that if you experience fainting, unusual tiredness or mental/mood changes such as confusion then you should head to the emergency room as these are serious conditions that need immediate attention. ## From what I read on Medline Plus, nausea is one of the more serious side effects. I don't know about discontinuing use, but I would report what you are experiencing to you...

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I am a 63 year old female with osteoporosis. I will start Forteo tonight and have some concerns based on some of the comments. Are there any positive comments that you can share? ## The main thing about reading comments online is that the people who go hunting for a place to ask questions, or make comments about it, are those that have had problems. Most people taking it do just fine, and aren't looking for a site like this to see if others share their experiences. Unfortunately, good experiences are rarely shared. The FDA does warn that Forteo may cause side effects, such as nausea, administration site reaction, headache, leg cramps, and heartburn. Ref: Forteo Information How is it working for you?

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In Japan and Korea, teriparatide (generic of Forteo) is available for once-a-week or twice-a-week-injections -- instead of a daily injection. Their studies show its effectiveness this way is as good as an injection every day. They take 60 micrograms once a week, or 30 micrograms twice a week. Has anybody found a way to take the U.S. injector pen to administer 30 micrograms one time or two times a week?