Anyone Else Trying Savella For Fibromyalgia? (Page 3)
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This is a new medication that just came out for fibromyalgia. I have several other conditions involving spinal degeneration , herniated discs, arthritus, etc.
I've been taking this medication for a little over 2 weeks now and have worked up to the full dose. My biggest symptom seems to be upset stomach but I don't know if it's from the Savella or from de-toxing from 7 other medications that I've been on for over 10+ yrs.
Is there anyone else out there that has started this medication that can give me any information that they may have on it?

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Go to a Rheumatologist. They have connected osteoarthritis with fibromyalgia, and my Doctor has booklets with fibro and osteo all in one. It is a two pronged attack. Any doctor who doesn't believe in fibro needs to lose their license. Unfortunately, some still don't but they are the minority. I feel like I am dying too on some days and just try to get through a day at a time. I take Savella and no side effects and great results..lyrica was great, except I gained 40 lbs and my tongue swelled and I bit my tongue, and as the dosage increased my throat swelled, so I was allergic. Lost all the weight with savella, and also take lexapro which helps the depression (slight) from chronic pain, but ALSO helps the fibro..also eat no sugar, anything "white" is not right! use only whole grains, not whole wheat, brown rice, reduce your carbs, you will see a huge improvement in the fibro.

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I seem to notice that so many of these Medications involve mind confusion and memory losses and I missed one dose of Cymbalta and got a Migraine. I say all this cause I have had Fibro for 13 years and this is the first time I have been able to use medications (lack of Insurance) and from what I am reading from you all, it just seems that all Fibro patients are looking for relief from our pain, and it seems like all these meds have Mental repercussions. Do you all think it is possible that the doctors still think this pain is in our heads and are prescribing Psychiatric drugs that have some (And I use the term very loosely) pain relieving properties. I think the doctors are just relieving the psychosis they all think we have?? What do you all think?? Thanks for listening. On another note I am tired of telling my doctors that I am in PAIN level 8-9 pain and being prescribed 30mg Cymbalta once a day. Did she think I was kidding? I feel like I am gonna be in a wheelchair in less than a year. I am working a physical 12 hour a day job and I feel like I am dying, it is everything I can do to pull through it. Any advice? Should I fire my Doctor, I know she is just now seeing me for the first times but That doesn't mean I have not been dealing with it for an extremely Long time.

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DV -- I have been on Savella for two years now. You need to eat before you take it. And, don't go hungry--just keep a little something in your stomach all the time. It has helped me so much--I will sing its praises forever.

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Everybody is so different, I have fibro, and degenerative disc disease...osteo arthritis everywhere..savella, never made me sick at all. It could be withdrawals from what they took you off. Ive had no weight gain, only relief. I could not take lyrica or cymbalta, bad reaction. Tramadol did nothing. I just have some days much worse than others, and sugar should be eliminated for fibro...i.e. all white carbs, refined anything. You will notice a huge difference and might lose some weight, I do not eat any dessert anymore, but once you get no sugar, you won't crave it.

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Kathleen yes nausea was so bad at first that I would just projectile throw up. My doc put me on phenergan for the first month with it and now no side effects at all, just pure relief. I love my savella and recommend it to everyone with fibro to try just a least for a month and always tell them to ask for the phenergan just in case.

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Hi I am new to this forum. I have have fibro for about 10 years now, also spinal stenosis, and several bulging discs. I have been on Savella now for over a year and it has truly been a God send. At first I had extreme nausea and my doc added phenergan to help. I have had way less pain. I am also on 5 mg oxycodone hcl twice a day and methadone 5mg twice a day. My doctor just bumped me up to 100mg of Savella twice a day. I have had some weight gain, but it is due to other issues. I have also been started on xanax this past month due to bad panic and anxiety attacks. I was tried on the cymbalta and lyrica and had severe allergic reaction to both. I have enjoyed reading the posts and hope that this forum is still active. Its nice to be able to discuss things that others just dont understand.

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Tramadol is the ONLY drug that worked for me, but now no doctor will prescribe a narcotic for fibromyalgia. I took it for 11 years and felt great every single day. I would do anything to be on it again - even try to get it in Mexico or illegally. It is the only thing that ever worked for me. I went to the doctor today and was completely honest with her about wanting it, but she would only give Savella. The first one in the sample pack has made me very nauseated - too much even to eat something. Very discouraged.

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Okay ladies,,,,,I went to a very good rheumatologist and he did xrays of every joint and bone and ran all kinds of labs. When he looked at the xrays,,,,I had osteoarthritis all over,,,not FIBROMYALGIA. So, my MD was wrong.My labs were great. I was put on Savella and took it for 3 months and it was making me so sad. I did'nt even have fibromyalgia. I asked her to send me to a Rheumatologist at first and she said I had fibro and she could treat me for it. You ladies beware of what happened to me and get checked. I am on Mobic during the day and pletal at night and I getting relief, finally. Good luck.

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I am still on the 25mg dose from the tri pack. The pain meds my Dr added has helped me a lot.. so it's hard to say at this point if it's the pain med or the Savella thats doing the job. I haven't noticed much in mood swings since starting it. However before I started I was crying every day... The pain, the stress, etc. So I hope this will work for me. Thanks so much to all who share their experiences with this med, it's really helpful to read how others are doing.

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I took Levaquin for pneumonia, twice in six months. Have never known anyone to say there could be a correlation between this drug and developing fibromyalgia. I was just recently diagnosed with he fibro. Am managing or trying to manage the pain with tylenol and naprosyn but its not taking all the pain away. I don't want to go on the strong meds, too many bad side effects.

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Nausea is a very common and annoying side effect of Savella. It gets a bit better with time, but I have noticed that I absolutely have to eat something before I take it. Then, during the day, I really can't get too hungry or nausea starts to set in. I just try to eat a little all day long. I would not be able to function without Savella because I cannot take any pain meds except OTC stuff.

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I noticed you said you were on Prozac and Topomax before. Funny, because so was I. I have quit taking the Prozac now, because my depression/anxiety has gotten better, but now with the fibromyalgia, some of those feelings are coming back. One of the side effects I noticed right away from the savella was nausea. Was wondering if you noticed this at all?

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Dee Dee. This past week I went to dinner with a friend who has been doing acupuncture for bursitis in her hip and she said there was a lady there having it for fibromyalgia -- I may try that some day! Just another option to think about.

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I have been the same route though our reactions are different to Savella.I have gone off everything but one Valium and Ambien CR at night. I have gone all natural, (read my past posts) and have felt the best I have in the last four years. What can it hurt to try? Natural does not make you feel crazy and depressed the way these other drugs do. I have lived that frustration.....

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I have been on Savella for 7 weeks. I could not stop my wellbutrin and just take the savella, after a psycho month they added my wellbutrin. After starter pack I went to just 1 100 mg a day. At the very same time I started physical therapy. There they used a tens unit, and when I got done the first time I couldnt see well for an hour and had a headache. Since then even on days I didnt have PT I have had trouble with blurred vision and headaches along with nausea and constipation. I cannot see things 5" from my face and have headachea that could take down King Kong!
This was the last hope for me...have tried every fibro drug out there, none of it worked for me. I 41 and have the body of an 80 year old woman! There is no light and the end of my tunnel! EVER!

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I have tried Aleve in high doses and everything over the counter and Lyrica and Savella. I will be going to a rheumatologist in 10 day and hope to get some answers. I have trouble walking some days and that is not good. I have to work and have a young daughter still at home. I will not take any prescription pain meds,,,scared of them.

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I have constant pain in the muscles of my neck and shoulders, Savella never made that better and neither does the Supple. I am allergic to all anti-inflammmatories and steroids which helps with muscle ache but maybe a muscle relaxant or prescription Aleve would help with your pain. It did for me before my body became allergic to it. Might be worth a try, neither is as filled with the bad reactions most suffer with Savella. I'm lucky too, have a family that beleives in my pain and helps with things that I know will cause me to hurt.

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Most of my pain is in my muscles, only occasionally in my joints! Hurts the most through my back, my shoulders, my arm muscles. I'm starting to think that I have Chronic Fatigue maybe instead of or in addition to Fibromyalgia. I don't feel like I can tell anyone because they will all think I am just being a wuss. Thankfully my husband believes me.

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I appreciate all of your input and I will be trying the supple. Have a blessed day.

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Thank you and I will try the supple. God Bless you also.

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